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Self-care management of bothersome symptoms as recommended by clinicians for patients with a chronic condition : A Delphi study
Westland, Heleen Dickson Page, Shayleigh van Rijn, Michelle Aryal, Subhash Freedland, Kenneth E. Lee, Christopher Strömberg, Anna Vellone, Ercole Wiebe, Douglas J. Jaarsma, Trijntje
Westland, Heleen
Dickson Page, Shayleigh
van Rijn, Michelle
Aryal, Subhash
Freedland, Kenneth E.
Lee, Christopher
Strömberg, Anna
Vellone, Ercole
Wiebe, Douglas J.
Jaarsma, Trijntje
Abstract
Background
Chronically medically ill patients often need clinical assistance with symptom management, as well as self-care interventions that can help to reduce the impact of bothersome symptoms. Experienced clinicians can help to guide the development of more effective self-care interventions.
Objective
To create a consensus-based list of common bothersome symptoms of chronic conditions and of self-care management behaviors recommended to patients by clinicians to reduce the impact of these symptoms.
Methods
A two-round Delphi study was performed among an international panel of 47 clinicians using online surveys to identify common and bothersome symptoms and related self-care management behaviors recommended to patients with heart failure, chronic obstructive pulmonary disease, asthma, type 2 diabetes, or arthritis.
Results
A total of 30 common bothersome symptoms and 158 self-care management behaviors across the five conditions were listed. Each chronic condition has its own bothersome symptoms and self-care management behaviors. Consensus was reached on the vast majority of recommended behaviors.
Conclusions
The list of common bothersome symptoms and self-care management behaviors reflect consensus across four countries on many points but also disagreement on others, and a few recommendations are inconsistent with current guidelines. Efforts to encourage clinicians to recommend effective self-care management behaviors may reduce symptom impact in chronically ill patient populations.
Keywords
self-care, self-care management, symptoms, chronic care, Delphi study
Date
2022
Type
Journal article
Journal
Heart and Lung
Book
Volume
56
Issue
Page Range
40-49
Article Number
ACU Department
Faculty of Health Sciences
Mary MacKillop Institute for Health Research
Mary MacKillop Institute for Health Research
Collections
Relation URI
Source URL
Event URL
Open Access Status
Published as ‘gold’ (paid) open access
License
CC BY 4.0
File Access
Open