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Patient and carer experience of living with a pressure injury : A meta-synthesis of qualitative studies
Burston, Adam Miles, Sandra J. Fulbrook, Paul
Burston, Adam
Miles, Sandra J.
Fulbrook, Paul
Abstract
Introduction
Pressure injuries are a significant cause of harm, contributing to increased mortality and financial burden on the healthcare system. Significant research on pressure injury risk assessment, prevention and treatment exists, but limited research exploring the patient and carer experience of living with pressure injury.
Aims
The aim of this meta-synthesis was to describe the patient and carer experience of living with a pressure injury.
Design
Meta-synthesis.
Methods
A prospective review protocol was registered, and systematic search conducted across five electronic databases. The PRISMA 2020 checklist for reporting systematic reviews was used. Two reviewers independently undertook screening and review of articles, using the CASP checklist for evaluating qualitative research. A meta-synthesis using thematic content analysis was undertaken.
Results
Twelve studies met the inclusion criteria. Meta-synthesis led to the construction of three primary themes: loss of autonomy and independence, psychological effects, and adjustment. Within these primary themes, sub-themes of dependence, social isolation and social avoidance behaviours, feelings and emotions, loss, managing, physical consequences, service provision, and functional challenges, were identified.
Conclusion
The psychology and mindset of those involved, and support to navigate the challenges that arise are two unique and clinically relevant categorisations to guide provision of pressure injury care. Adaptation to a pressure injury is multi-faceted and contextual, challenges to adaptation create additional psychological burden. Interventions encompassing all facets of the experience are necessary. Current research into experiences is limited, and further research to support interventions is necessary.
Keywords
decubitus ulcer, meta-synthesis, patient care, pressure injury, pressure sore, pressure ulcer, systematic review
Date
2022
Type
Journal article
Journal
Journal of Clinical Nursing
Book
Volume
32
Issue
Page Range
3233-3247.
Article Number
ACU Department
School of Nursing, Midwifery and Paramedicine
Faculty of Health Sciences
Faculty of Health Sciences
Relation URI
Event URL
Open Access Status
Published as ‘gold’ (paid) open access
License
CC BY-NC 4.0
File Access
Open
Notes
© 2022 The Authors. Journal of Clinical Nursing published by John Wiley & Sons Ltd.
This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.